Caring for Caregivers of ALS Patients and Families: Healing Strategies and Perspectives for this Challenging Journey.
This is an informational and eye-opening conversation that Marilee hosted with two caregivers and an international expert on palliative care.
The panelists were:
Cynda Hylton Rushton, Ph.D. R.N.: Internationally recognized expert on palliative care and bioethics; Associate Professor, The Johns Hopkins School of Nursing
Detta Penna: Caregiver of husband, Peter, with ALS, copy editor, and book designer of Change Your Questions, Change Your Life
Christine Cutler: caregiver of husband Joel Cutler who has ALS. Christine also shared insights and reflections from the website of her amazing husband, Joel, including his blog about life with ALS.
Here is our list of resources for Caregivers: