Sep 18, 2014
Today’s blog is accompanied by a YouTube video of Kim Aubry (Executive Director of the Inquiry Institute) and me taking the ALS Ice Bucket Challenge. There are many reasons why we decided to do this, all of which are answers to the question “How can we help?” We’d love for you to ask yourself the same question and make a donation to help fight ALS. At the end of this blog you’ll find links to the YouTube video and two places to make donations to ALS. You’ll also see how to access a teleconference we produced about five years ago entitled Caring for Caregivers of ALS Patients and Their Families.
I’d also like to use this space to honor some friends stricken with ALS.
As it turns out, I also have an indirect link to ALS through Detta Penna, copy editor and book designer extraordinaire. Detta was the “inside the covers” book designer of Change Your Questions, Change Your Life: 10 Powerful Tools for Life and Work as well as for Teaching that Changes Lives: 12 Mindset Tools for Igniting the Love of Learning. Detta’s husband Peter has had a progressively debilitating form of ALS for a long time and over the years she and I have had many conversations about her experiences.
I was brought to tears when Detta told me that she uses some of the ideas in my books to help her deal with the daunting challenges of being a caregiver. She said that the major illustration in the books, The Choice Map, has been especially helpful for her. Her sharing this inspired the idea of creating the free teleconference, Caring for Caregivers of ALS Patients and Their Families that I mentioned above. This hour-long conversation that I had with Detta and Dr. Cynda Rushton explores those challenges and provides some suggestions which we dearly hope will make a difference for listeners. Cynda holds an endowed chair at Johns Hopkins University School of Medicine and is an internationally recognized expert in ethics and palliative and end-of-life care.
What can you do?